Castinetti · Endocrine-related cancer 2024 · narrative review · n=?

Genotype/phenotype correlations in multiple endocrine neoplasia type 2.

Level 5 - mechanism / opinion, no new human data

Narrative review synthesizing clinical concepts without systematic review methodology

PubMed 39404342 · doi:10.1530/ERC-24-0139 · record verified 2026-08-26

What was done

This brief narrative review summarizes established and emerging genotype-phenotype correlations in multiple endocrine neoplasia type 2 (MEN 2) driven by rearranged during transfection (*RET*) gene mutations, as well as potential modifier factors influencing disease presentation.

What was found

Medullary thyroid cancer (MTC) occurs in approximately 100% of MEN 2A and MEN 2B cases, while pheochromocytoma occurs in roughly 50%. Specific *RET* mutations are linked to early-onset MTC risk starting from 1 year of age (highest risk) or 5 years of age (high risk), determining the optimal timing for prophylactic thyroidectomy. Specific variants also govern pheochromocytoma penetrance, though phenotypic variation exists where some carriers of high-risk mutations show non-aggressive MTC or never develop pheochromocytoma. No additional statistical data or quantitative measures were reported in the abstract.

Why it matters

Clarifying genotype-phenotype relationships and identifying disease modifiers can optimize the timing of preventive thyroidectomy and allow personalized surveillance for patients carrying pathogenic *RET* variants.

Limits

As a brief narrative review, it lacks a systematic literature search, pooled effect estimates, or standardized quality assessment of included studies. No patient sample sizes or specific modifier mechanisms are detailed in the abstract.

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